Amyotrophic Lateal Sclerosis (ALS) is a progressive and degenerative motor neuron disease that affects the individuals’ ability to participate in their daily activities. Over time, patients become increasingly dependent, and their quality of life can be significantly affected. Loss of self-control and decreased participation in occupational roles are common occurrences in many patients. A need for guidelines on managing shoulder pain and complications for patients with ALS is evident due to the frequent Underestimation of pain in this population. It may contribute to a lack of research and evidence-based treatment. This program development translates the current evidence into practical guidance on the management of shoulder complications for patients with ALS. The program aims to promote occupational performance and quality of life in patients with ALS. The creation of therapist and patient/caregiver education materials intends to facilitate the transferability of the information in the institution and across the continuum of care to therapists working in remote areas with decreased access to speciality centers. This program development transforms the provision of services practice by advocating for patients affected by ALS and empowering the occupational therapy community.
